Hydrocephalus Resources


Founded in 1983 by parents of children with hydrocephalus, the Hydrocephalus Association (HA) has grown to be the nation’s largest and most widely respected organization dedicated to hydrocephalus across the entire lifespan, from infants to seniors. HA serves as the primary nexus for research, information, and patient advocacy regarding hydrocephalus, a condition defined by an abnormal, excessive accumulation of cerebrospinal fluid.

With a mission to promote public health and improve patient care through advocacy of innovative, research-driven medical device technology, MDMA has been the voice for medtech innovation. This association plays a proactive role in helping shape policy that impacts the ecosystem by working with key Members of Congress, senior staff at FDA, CMS and other agencies, and member support.

The Hydrocephalus Clinical Research Network (HCRN) is a network of pediatric-focused hospitals across the United States and Canada. The mission of the HCRN is to dramatically improve the lives of kids suffering from hydrocephalus by conducting important and field-changing, multi-center clinical research.

The Adult Hydrocephalus Clinical Research Network (AHCRN) is a network of hospitals that conduct clinical research on hydrocephalus to improve treatment for the adult forms of hydrocephalus, including transitional patients who were diagnosed as children, those who acquire hydrocephalus as adults, and patients with normal pressure hydrocephalus.